Meet the NPC Superstars
Played at the Starlight Soirée. A little girl’s voice walks through the NPC Superstars — their names and faces, the hard parts of this disease, and the joy that is still theirs. Kelly Lee, Gracie’s mom, made the film.
Interviews we have done, and pieces others have made, so visitors can sit with Liam’s family for a few minutes. Other NPC family stories live on Friends. Follow along on X @Life4Liam and Instagram @rarekido and YouTube @Life4LiamAndFriends.
Played at the Starlight Soirée. A little girl’s voice walks through the NPC Superstars — their names and faces, the hard parts of this disease, and the joy that is still theirs. Kelly Lee, Gracie’s mom, made the film.
A short, captioned cut of Liam — park, hat, the boy the work is for.
Abel Garcia talks with the Mitchell family about Liam, insurance barriers, cross-country drives because Liam cannot fly, and the race for a cure.
Read the Channel 13 articleThe second annual fundraiser recap. $50,000 raised and sent to Dr. Mark Schultz for the research.
A 54-second Rare Disease Day short. Liam was diagnosed at two months. The family chose to fight, and asks others to fund the gene-therapy path with them.
The Sun sits with Jennifer, Jordan, and Liam at Cure 4 the Kids — diagnosis, daily life, Adrabetadex, and why federal rare-disease funding matters.
Read the articleJordan and Jen share video from the first Rare Disease Day fundraiser.
Watch on XThe first Rare Disease Day gathering. $25,000 raised and sent to Dr. Mark Schultz for the research.
Denise Rosch’s Channel 3 package on Liam’s NPC diagnosis, a hard week of walking regression, and the Mitchell family’s race to find a treatment.
FOX5’s Behind the Badge segment with Kelly McMahill on the Mitchells, LVMPD, and Behind the Blue.
On Global Niemann-Pick Awareness Day, Jordan — then an LVMPD IT manager — opens up about Liam’s diagnosis and what the family is fighting for.
Send a YouTube, news, or podcast link to jordan@life4liam.com and we will add it here. The children’s stories are on Friends.