Life 4 Liam
Liam’s story
A boy. A diagnosis. A race we refuse to lose.
Niemann-Pick Type-C often hides for years. Families wait, are misdiagnosed, and lose time they cannot get back. Liam’s family learned the truth early. That is a blessing and a clock.
They founded the Life For Liam And Friends Foundation to do four things: hold NPC families, spread awareness, teach the public what this disease actually is, and fund medical research that could change the ending.
What the family is fighting for
Not a slogan. A treatment that teaches the body to make the missing NPC1 protein. That work lives at the Schultz Laboratory at the University of Iowa Stead Family Children’s Hospital.
If you are here because you love Liam, or because you just heard the letters N-P-C, you are in the right place. Stay. Learn. Give if you can.