NATIONAL RARE DISEASE DAY
February 28th, 2026
5:00PM - 9:00PM PT
Private Event, Guest Must Be Registered To Attend
Join us for the second annual
Life For Liam & Friend Foundation fundraiser event at the incredible Via Tivoli estate.
Over the past three years, the Foundation’s efforts have advanced promising scientific progress toward treatments that may ultimately benefit not only those affected by NPC, but potentially those impacted by Alzheimer’s and other neurodegenerative diseases. We hope you will join us in supporting this mission.
OUR MISSION
Fighting Childhood Alzheimer's
Niemann-Pick Disease is a rare and devastating condition often referred to as "Childhood Alzheimer's." It tragically affects the lives of children and their families, yet often goes unnoticed in the broader medical community.
The Life For Liam & Friends Foundation is hosting this significant fundraiser to generate crucial financial support for medical research and to raise awareness. Together, we can foster hope and encourage breakthroughs in understanding and treating this rare condition.
An Evening Under the Stars
Join us at the exquisite Via Tivoli estate for an unforgettable night of elegance and purpose.
Breathtaking Views
Arrive to the enchanting sight of the sun setting over the iconic Las Vegas Strip, creating a picturesque backdrop for the evening.
Acrobatic Arts
Be captivated by incredible acrobatic performances that showcase the talent of skilled performers, adding magic to the night.
Savory Delights
Indulge in an array of savory and delicious refreshments prepared specially to complement the evening's entertainment.
KEYNOTE SPEAKERS
Dr. Mark Schultz
University of Iowa
We are honored to welcome Dr. Mark Schultz, a prominent expert in the field from the University of Iowa. He will share valuable insights regarding the latest advancements in research and treatment options for Niemann-Pick Disease. His work represents the cutting edge of hope for families affected by this condition, bridging the critical gap between complex clinical research and the day-to-day realities of patient care. Dr. Schultz’s presentation promises to illuminate the current state of therapeutic interventions and the horizon of future cures.
SILENT AUCTION
Bid for a Cause
Bid on exclusive items and experiences. All Proceeds go directly towards supporting the foundations's mission.
Sitback and watch the awe-inspiring performances by Cirque Du Soleil.
You will have a blast playing with the 2 pickle ball paddles and #100 gift certificate.
Dig into the best BBQ in Las Vegas.
Enjoy a relaxing and rejuvenating private massage.
More items being added weekly!
Can’t join us for the event? Register to bid remotely on the Auction Site
Dr. Stephanie Cologna
University of Illinois Chicago
We are privileged to host Dr. Stephanie Cologna, Principal Investigator at the Cologna Lab, University of Illinois Chicago. A pioneer in the molecular analysis of Niemann-Pick Type C, Dr. Cologna utilizes cutting-edge mass spectrometry to map the intricate landscape of lipids and proteins within the brain. Her lab’s groundbreaking work in identifying specific biomarkers is crucial for early detection and tracking disease progression. By decoding the chemical language of NPC, Dr. Cologna is helping to rewrite the narrative from uncertainty to targeted precision medicine.
Alec Koujaian
NPC Patient Advocate & NPC Warrior
In a community often defined by statistics, Alec Koujaian stands as a singular force of resilience and hope. As a young adult living with Niemann-Pick Type C, Alec defies clinical expectations with his high functionality and indomitable spirit. A featured voice in numerous interviews and documentaries, he offers a rare and powerful firsthand perspective on life with NPC. Alec joins us not just as a patient, but as a testament to the potential of research, reminding us that every dollar raised supports real lives, real dreams, and a future where a diagnosis is not a destiny.
Niemann Pick Type-C
Is a rapid progressing neurodegenerative disease that is cause by the lack of NPC1 protein in every cell of the body which lead to the toxic build up of cholesterol in the brain and organs. NPC is always fatal.
5 Years
Average Time to Find Diagnosis
5 Years
Average Lifespan after Diagnosis if Untreated
ZERO
Cures
Need a Place to Stay?
Via Tivoli is located about 25 minutes South of the Las Vegas Strip. If you want to stay somewhere close to the venue but still get a bit of that Las Vegas Experience, here are some recommendations.
